International Federation for Spina Bifida and Hydrocephalus (IF SBH)
Fédération internationale des personnes atteintes de spina-bifida et d'hydrocéphalie
Internationale Vereniging voor Spina Bifida en Hydrocephalus
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Contact Details
Main Website: https://www.ifglobal.org/
Facebook: https://www.facebook.com/ifsbh
Twitter: https://twitter.com/ifsbh
LinkedIn: https://www.linkedin.com/company/international-federation-for-spina-bifida-and-hydrocephalus/
Youtube: https://www.youtube.com/user/IFglobalorg
Instagram: https://www.instagram.com/ifsbh
URL: https://www.worldspinabifidahydrocephalusday.com
URL: https://www.smarterfutures.net/
Founded
1981
Aims
Improve the quality of life of people with Spina Bifida and/or Hydrocephalus throughout the world; decrease the prevalence of Spina Bifida and Hydrocephalus by primary prevention.
Events
2026 – International Conference on Spina Bifida and Hydrocephalus40 past events available with paid subscription only.
Activities
Available with paid subscription only.Structure
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Available with paid subscription only.Relations with Inter-Governmental Organizations
Associated with Department of Global Communications of the United Nations.
- Accredited by: United Nations Office at Vienna (UNOV)
- Accredited by: United Nations Economic and Social Council (ECOSOC)
- Accredited by: European Commission Disability Platform
- Accredited by: United Nations Children's Fund (UNICEF)
- Accredited by: UN Women(Disability Inclusion)
- Accredited by: World Health Organization (WHO)(Collaborative Global Network for Rare Diseases)
- Accredited by: World Food Programme (WFP)
Relations with Non-Governmental Organizations
In liaison with technical committees of: B-XB2314 - International Organization for Standardization (ISO). Participates in: European Reference Networks; E-XJ7693 - Global Partnership on Children with Disabilities (GPcwd). Close links with: EUROlinkCAT; International Neuro-Urology Society; C-XD6160 - Society for Research into Hydrocephalus and Spina Bifida (SRHSB); World Federation of Neurosurgical Societies. Links with: F-XJ1789 - European Foundation for the Care of Newborn Infants (EFCNI).
- Member of: European Disability Forum (EDF)
- Member of: European Patients' Forum (EPF)
- Member of: EURORDIS - Rare Diseases Europe
- Member of: International Disability and Development Consortium (IDDC)
- Member of: Platform Handicap en Ontwikkelingssamenwerking (PHOS)
- Member of: PMNCH
- Member of: Rare Diseases International (RDI)
- Member of: ERN-ITHACA
- Cooperates with: CDC’s National Center on Birth Defects and Developmental Disabilities
- Cooperates with: European Association of Urology (EAU)
- Cooperates with: Food Fortification Initiative (FFI)
- Cooperates with: Global Alliance for Improved Nutrition (GAIN)
- Cooperates with: Governor Kremers Centre-Maastricht University Medical Centre (GKC)
- Cooperates with: International Association of Operative Millers (IAOM)
- Cooperates with: International Children's Continence Society (ICCS)
- Cooperates with: Micronutrient Forum
Publications
Available with paid subscription only.Members
Available with paid subscription only.Type I Classification
Available with paid subscription only.Subjects *
- Medicine → Urogenital System
- Medicine → Reproductive System
- Society → Youth
- Society → Elderly
- Society → Sex-Related Questions
- Living Conditions → Living Conditions
- Societal Problems → Societal Problems
- Societal Problems → Prevention
- Health → Mental Health
- Health → Paediatrics
- Health → Nutrition
- Health → Care
- International Relations → International Relations
- Policy → Policy
- Interdisciplinarity → Interdisciplinarity
- Philosophy → Knowledge
UN Sustainable Development Goals **
UIA Org ID
XD7460
** UN SDGs are linked to the subject classification.
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