Rare Diseases International (RDI)

Search Open Yearbook

This information is part of the Open Yearbook, a free service of UIA's subscription-based Yearbook of International Organizations (YBIO). It includes profiles of non-profit organizations working worldwide in all fields of activity. The information contained in the profiles and search functionality of this free service are limited.

The full-featured Yearbook of International Organizations (YBIO) includes over 72,500 organization profiles, additional information in the profiles, sophisticated search functionality and data export. For more information about YBIO, please click here or contact us.

The UIA is a leading provider of information about international non-profit organizations. The aim of the Open Yearbook is to promote the activities of international non-governmental organizations (INGOs) and intergovernmental organizations (IGOs).

Contact Details

URL: https://www.rarediseasesinternational.org/
Facebook: https://www.facebook.com/RareDiseasesInt
LinkedIn: https://www.linkedin.com/company/rare-diseases-international/
Twitter: https://twitter.com/rarediseasesint

More detailed data available with paid subscription.


2015-05-28 Madrid Spain


Initiated by Rare Disease National Alliances for USA, Canada, Japan, Australia and Russia, and D-XD6342 - EURORDIS - Rare Diseases Europe. Statutes adopted 10 May 2018. Current bylaws adopted 18 May 2020.


United, expand and reinforce the rare diseases movement of patient organisations and patient advocates; put rare diseases on the agenda of international organizations and multilateral institutions, and on the national agenda of countries worldwide; strengthen rare disease patient groups capacity to act at local, national, regional and global levels and to interact with other rare disease groups.


9 past events available with paid subscription only.


Available with paid subscription only.


Annual Meeting; Council. Committees (2): Finance and Sustainability; Advocacy. Working Groups. Hosted by D-XD6342 - EURORDIS - Rare Diseases Europe.


Available with paid subscription only.


Available with paid subscription only.


Available with paid subscription only.

Type I Classification

Available with paid subscription only.

Type II Classification

Available with paid subscription only.

Subjects *

Available with paid subscription only.

UN Sustainable Development Goals **

GOAL 3: Good Health and Well-being



Last News


* Subject classification is derived from the organization names and aims.
** UN SDGs are linked to the subject classification.

You are viewing profile from the Yearbook of International Organizations Online.
← return to your search page to find additional profiles.
Terms of Use

UIA allows users to access and make use of the information contained in its Databases for the user’s internal use and evaluation purposes only. A user may not re-package, compile, re-distribute or re-use any or all of the UIA Databases or the data* contained therein without prior permission from the UIA.

Data from database resources may not be extracted or downloaded in bulk using automated scripts or other external software tools not provided within the database resources themselves. If your research project or use of a database resource will involve the extraction of large amounts of text or data from a database resource, please contact us for a customized solution.

UIA reserves the right to block access for abusive use of the Database.

* Data shall mean any data and information available in the Database including but not limited to: raw data, numbers, images, names and contact information, logos, text, keywords, and links.