Rare Diseases International (RDI)

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Contact Details

URL: http://www.rarediseasesinternational.org/
Facebook: https://www.facebook.com/RareDiseasesInt
LinkedIn: https://www.linkedin.com/company/rare-diseases-international/
Twitter: https://twitter.com/rarediseasesint

Available with paid subscription only.

Founded

2015-05-28 Madrid Spain

History

Instigated by D-XD6342 - EURORDIS - Rare Diseases Europe. Current bylaws adopted 10 Jan 2017.

Aims

United, expand and reinforce the rare diseases movement of patient organisations and patient advocates; put rare diseases on the agenda of international organizations and multilateral institutions, and on the national agenda of countries worldwide; strengthen rare disease patient groups capacity to act at local, national, regional and global levels and to interact with other rare disease groups.

Events

7 past events available with paid subscription only.

Activities

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Structure

Annual Meeting; Council. Committees (2): Finance and Sustainability; Advocacy. Working Groups. Hosted by D-XD6342 - EURORDIS - Rare Diseases Europe.

Finance

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Publications

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Members

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Type I Classification

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Type II Classification

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Subjects *

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UN Sustainable Development Goals **

GOAL 3: Good Health and Well-being

UIA Org ID

XM7435

Last News

2022

* Subject classification is derived from the organization names and aims.
** UN SDGs are linked to the subject classification.

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