European Network of Myeloma Patient Groups (Myeloma Euronet)

Réseau européen de groupes de de patients atteints du myélome multiple
Red Europea de Grupos de Ayuda para Pacientes con Mieloma
Europäisches Netzwerk von Myelom-Patientengruppen
A Rede Europeia Dos Grupos de Doentes Afectados do Mieloma Múltiplo
Rete Europea di Gruppi di Assistenza per Pazienti Affetti da Mieloma Multiplo
Evropska sit' Organizaci Sdruzujicich Pacienty s Mnohocetnym Myelomem
Europejska Siec Grup Pacjentów Chorych na Spzpiczaka
Miyelom Hastalari Grubu Avrupa Ag
Regeaua Europeana a Pacientilor cu Mielom

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History

3 June 2005, Stockholm (Sweden), at 10th Congress of European Hematology Association (EHA). Registered in accordance with Belgian law. As of 2012 in dissolution following merger with European Myeloma Platform (EMP), to become Myeloma Patients Europe (MPE), Oct 2011.

Aims

Raise awareness of multiple myeloma, a form of bone marrow cancer.

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Activities

Provides information on diagnosis, treatment and care of persons living with multiple myeloma; supports member organizations in fulfillment of their missions; advocates, both independently and in collaboration, on behalf of those affected by multiple myeloma among EU health care policy makers; shares best practice in shaping appropriate policies at the European level; ensures equal access to the highest standards of treatment and care; builds partnerships among members; encourages growth of new multiple myeloma patient groups throughout Europe, especially in cities and countries where none are currently present; raises European awareness of multiple myeloma amongst relevant stakeholders and the public.

Structure

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Languages

Arabic, Czech, English, French, German, Greek, Italian, Polish, Portuguese, Romanian, Russian, Spanish, Turkish.

Staff

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Financing

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Relations with Inter-Governmental Organizations

Relations with 1 inter-governmental organizations.
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Relations with Non-Governmental Organizations

Relations with 9 non-governmental organizations.
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Publications

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Members

Members in 28 countries
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Type I Classification

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Type II Classification

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Subjects *

  • Medicine
    • Cancer
  • Health Care
    • Staff Associations

UN Sustainable Development Goals **

GOAL 3: Good Health and Well-being

UIA Org ID

J2036

Last News Received

2012
* Subject classification is derived from the organization names and aims.
** UN SDGs are linked to the subject classification.

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