European Reference Networks (ERN)

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Contact Details

URL: https://health.ec.europa.eu/european-reference-networks_en
EpiCare: https://epi-care.eu/

More detailed data available with paid subscription.

Founded

2017

History

First ERNs launched Mar 2017, as virtual networks involving healthcare providers across Europe. Process and criteria for establishing an ERN set in F-XF2147 - European Union (EU) legislation.

Aims

Facilitate discussion on complex or rare diseases and conditions that require highly specialised treatment, and concentrated knowledge and resources.

Events

4 past events available with paid subscription only.

Structure

Initiative mainly driven by EU countries. Formal body: Board of Member States. Current ERNs (24):

  • European Reference Network on bone disorders (ERN BOND);
  • European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders (ERN CRANIO);
  • European Reference Network on endocrine conditions (Endo-ERN);
  • European Reference Network on epilepsies (ERN EpiCARE);
  • European Reference Network on kidney diseases (ERKNet);
  • European Reference Network on neurological diseases (ERN-RND);
  • European Reference Network on inherited and congenital anomalies (ERNICA);
  • European Reference Network on respiratory diseases (ERN LUNG);
  • European Reference Network on skin disorders (ERN Skin);
  • European Reference Network on adult cancers (solid tumours) (ERN EURACAN);
  • European Reference Network on haematological diseases (ERN EuroBloodNet);
  • European Reference Network on urogenital diseases and conditions (ERN eUROGEN);
  • European Reference Network on neuromuscular diseases (ERN EURO-NMD);
  • European Reference Network on eye diseases (ERN EYE);
  • European Reference Network on genetic tumour risk syndromes (ERN GENTURIS);
  • European Reference Network on diseases of the heart (ERN GUARD-HEART);
  • European Reference Network on congenital malformations and rare intellectual disability (ERN ITHACA);
  • European Reference Network on hereditary metabolic disorders (MetabERN);
  • European Reference Network on paediatric cancer (haemato-oncology) (ERN PaedCan);
  • European Reference Network on hepatological diseases (ERN RARE-LIVER);
  • European Reference Network on connective tissue and musculoskeletal diseases (ERN ReCONNET);
  • European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases (ERN RITA);
  • European Reference Network on Transplantation in Children (ERN TRANSPLANT-CHILD);
  • European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN).

Relations with Non-Governmental Organizations

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Members

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Type I Classification

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Subjects *

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UN Sustainable Development Goals **

GOAL 4: Quality Education

UIA Org ID

XM8759

* Subject classification is derived from the organization names and aims.
** UN SDGs are linked to the subject classification.

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