Founded 1985, as Ehlers-Danlos National Foundation. Current title adopted 1 May 2016.
Save and improve the lives of those affected by the Ehlers-Danlos syndromes and related disorders.
Events10 past events available with paid subscription only.
ActivitiesAvailable with paid subscription only.
Board of Directors; Medical and Scientific Board.
Relations with Non-Governmental OrganizationsAvailable with paid subscription only.
Type I ClassificationAvailable with paid subscription only.
Subjects *Available with paid subscription only.
UIA Org ID
** UN SDGs are linked to the subject classification.
← return to your search page to find additional profiles.
UIA allows users to access and make use of the information contained in its Databases for the user’s internal use and evaluation purposes only. A user may not re-package, compile, re-distribute or re-use any or all of the UIA Databases or the data* contained therein without prior permission from the UIA.
Data from database resources may not be extracted or downloaded in bulk using automated scripts or other external software tools not provided within the database resources themselves. If your research project or use of a database resource will involve the extraction of large amounts of text or data from a database resource, please contact us for a customized solution.
UIA reserves the right to block access for abusive use of the Database.
* Data shall mean any data and information available in the Database including but not limited to: raw data, numbers, images, names and contact information, logos, text, keywords, and links.