Founded by INSERM (French National Institute for Health and Medical Research). Became a European endeavour, 2000.
Improve the visibility of rare diseases in the fields of healthcare and research; provide high-quality information on rare diseases and expertise; contribute to generating knowledge on rare diseases.
ActivitiesAvailable with paid subscription only.
Management Board; Steering Committee; Advisory Board.
Annual BudgetAvailable with paid subscription only.
Relations with Inter-Governmental OrganizationsAvailable with paid subscription only.
Relations with Non-Governmental OrganizationsAvailable with paid subscription only.
MembersAvailable with paid subscription only.
Type I ClassificationAvailable with paid subscription only.
Subjects *Available with paid subscription only.
UIA Org ID
** UN SDGs are linked to the subject classification.
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