Shwachman-Diamond Syndrome Foundation
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1994, USA, by Joan Mowery, as Shwachman Syndrome International. Name changed to Shwachman-Diamond Syndrome International. Current name adopted 2004.
Support victims with Shwachman-Diamond syndrome and their families; educate the medical community and general public about the disease, which affects the pancreas, bone marrow and skeleton of children.
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